Donate Now
Help Fund the First SAMD9L
Gene Therapy
A personal breakthrough—with the power to unlock treatment for hundreds
Current Progress
Hi, I'm Nathan. When I was 16, I survived a battle with leukemia. Years later, I discovered the cause: a rare mutation in the SAMD9L gene. That same mutation is now attacking my strength, memory, and immune system—and without intervention, it could lead to further organ failure and decline.
If you have a moment, please watch this 3-minute video. It explains what I'm facing—and the new gene therapy that could finally change the course of this disease
To those who supported our earlier campaign—thank you. In the very near future I will be sharing the discoveries that you have made possible. The reason I am asking for your help once more is to help me become the recipient of a gene therapy, and to lay the foundation for others to follow.
What the video Can't show:
This disease is already taking my strength, cognition, immune system—and even parts of my personality.
Without intervention, we know what's coming next:
Brain Atrophy, nerve and muscle breakdown, and Organ Failure.
But now, there's Hope.
A Window of Hope has Opened
I've been chosen by the N'Lorem Foundation to receive a personalized gene therapy.
The medicine is designed to silence the toxic SAMD9L mutation causing this decline. N-Lorem is covering the design and manufacture—work that would otherwise cost millions.
But they don't cover the $45,000 per year needed to administer and monitor the therapy. Without that support, I can't receive the treatment.
This is Bigger Than Me
Your gift does more than help me—it helps the hundreds of other SAMD9/L patients like me.
If this trial succeeds, it can become the model for treating them too.
Are you part of a foundation, company, or philanthropic organization that supports causes such as this?
We're actively seeking funding partners to help complete this effort and move the science forward. Please reach out directly—we'd love to talk.
About our funded drug discovery project.